Clinical management, psychosocial characteristics, and quality of life in patients with homozygous familial hypercholesterolemia undergoing LDL-apheresis in Turkey: Results of a nationwide survey (A-HIT1 registry)

Kayikcioglu, Meral; Kuman-Tuncel, Oztem; Pirildar, Sebnem; YILMAZ, MEHMET; KAYNAR, LEYLAGÜL; Aktan, Melih; Durms, Rana; Gokce, Cumali; Temizhan, Ahmet; ÖZCEBE, OSMAN; KARAAĞAÇ AKYOL, TÜLAY; Okutan, Harika; Sag, Saim; ÖZ GÜL, ÖZEN; Salcioglu, Zafer; Yenercag, Mustafa; Altunkeser, Bulet; KUKU, İRFAN; Yasar, Hamiyet; Kurtoglu, Erdal; Demir, Melis; Demircioglu, Sinan; PEKKOLAY, ZAFER; İLHAN, OSMAN; Tokgozoglu, Lale

doi:10.1016/j.jacl.2019.02.001

Clinical management, psychosocial characteristics, and quality of life in patients with homozygous familial hypercholesterolemia undergoing LDL-apheresis in Turkey: Results of a nationwide survey (A-HIT1 registry)

Kayikcioglu M., Kuman-Tuncel O., Pirildar S., YILMAZ M., KAYNAR L., Aktan M., ...Daha Fazla

JOURNAL OF CLINICAL LIPIDOLOGY, cilt.13, sa.3, ss.455-467, 2019 (SCI-Expanded, Scopus)

Yayın Türü: Makale / Tam Makale
Cilt numarası: 13 Sayı: 3
Basım Tarihi: 2019
Doi Numarası: 10.1016/j.jacl.2019.02.001
Dergi Adı: JOURNAL OF CLINICAL LIPIDOLOGY
Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Scopus
Sayfa Sayıları: ss.455-467
Bursa Uludağ Üniversitesi Adresli: Evet

Özet

BACKGROUND: Homozygous familial hypercholesterolemia (HoFH) is a rare, life-threatening inherited disease leading to early-onset atherosclerosis and associated morbidity. Because of its rarity, longitudinal data on the management of HoFH in the real world are lacking, particularly on the impact the condition has on quality of life (QoL), including the impact of the extracorporeal lipid removal procedure apheresis (LA).