Clinical management, psychosocial characteristics, and quality of life in patients with homozygous familial hypercholesterolemia undergoing LDL-apheresis in Turkey: Results of a nationwide survey (A-HIT1 registry)

Kayikcioglu, Meral; Kuman-Tuncel, Oztem; Pirildar, Sebnem; YILMAZ, MEHMET; KAYNAR, LEYLAGÜL; Aktan, Melih; Durms, Rana; Gokce, Cumali; Temizhan, Ahmet; ÖZCEBE, OSMAN; KARAAĞAÇ AKYOL, TÜLAY; Okutan, Harika; Sag, Saim; ÖZ GÜL, ÖZEN; Salcioglu, Zafer; Yenercag, Mustafa; Altunkeser, Bulet; KUKU, İRFAN; Yasar, Hamiyet; Kurtoglu, Erdal; Demir, Melis; Demircioglu, Sinan; PEKKOLAY, ZAFER; İLHAN, OSMAN; Tokgozoglu, Lale

doi:10.1016/j.jacl.2019.02.001

Clinical management, psychosocial characteristics, and quality of life in patients with homozygous familial hypercholesterolemia undergoing LDL-apheresis in Turkey: Results of a nationwide survey (A-HIT1 registry)

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Kayikcioglu M., Kuman-Tuncel O., Pirildar S., YILMAZ M., KAYNAR L., Aktan M., ...More

JOURNAL OF CLINICAL LIPIDOLOGY, vol.13, no.3, pp.455-467, 2019 (SCI-Expanded)

Publication Type: Article / Article
Volume: 13 Issue: 3
Publication Date: 2019
Doi Number: 10.1016/j.jacl.2019.02.001
Journal Name: JOURNAL OF CLINICAL LIPIDOLOGY
Journal Indexes: Science Citation Index Expanded (SCI-EXPANDED), Scopus
Page Numbers: pp.455-467
Bursa Uludag University Affiliated: Yes

Abstract

BACKGROUND: Homozygous familial hypercholesterolemia (HoFH) is a rare, life-threatening inherited disease leading to early-onset atherosclerosis and associated morbidity. Because of its rarity, longitudinal data on the management of HoFH in the real world are lacking, particularly on the impact the condition has on quality of life (QoL), including the impact of the extracorporeal lipid removal procedure apheresis (LA).